Just a quick update on Joseph. We continue to monitor Joseph and have noticed that he is breathing a bit louder, his retractions are visibly worse (20% deeper, some head bobbing) at times and we have noticed that when sleeping and NOT on oxygen his Sp02 levels dips more often into the 80's.
We are going in for the sleep study tonight (Thursday). However, it being a holiday weekend the doctors are out until Wednesday. I have requested they get the results to us asap.
Are Thursday's the primary day you do surgery's? If we get the results on Friday, what other days are you able to get into the OR?
Thanks
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Mon and Thurs
Albert Park, MD
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Is there room in the surgery schedule for Joseph Daniels on Monday July 3rd?
--Jason
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Let's find out what the PSG showed first. Thanks.
Albert Park, MD
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Monday, July 03, 2017 4:14 PM
Makes Sense. I hope it shows quantitatively what we are observing. I have seen a few obstructive apnea events and while he doesn't always breath loudly, he has periods where he does sound worse. If surgery isn't needed, we don't want it, but it is tough cause we don't want to a risk him turning blue either.
They indicated you would get the results via fax first, maybe we can call and get the results through you guys earlier than waiting for it to arrive in the mail.
Thanks
Jason and Kristine
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| Mon, Jul 3, 2017 at 5:46 PM |
Sure.
Albert Park, MD
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Monday, July 03, 2017 5:47 PM
Phil or Tricia,
Can you obtain the PSG results for Joseph? Can you call Dr. Pfeffer's office? Thanks.
Phil or Tricia,
Can you obtain the PSG results for Joseph? Can you call Dr. Pfeffer's office? Thanks.
A
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Thu, Jul 6, 2017 at 2:31 PM
Dr. Park,
I spoke with the RN at Dr. Pfeffer’s office. She reports that Dr. Pfeffer has not completed the report yet. She anticipates that it should be ready by Monday 7/10. She will fax the report to us as soon as it is completed.
Thanks,
Tricia
| ----- Sat, Jul 8, 2017 at 12:30 PM |
Dr Park,
Last night there are several things note worthy enough to report back to you
1) Joseph almost feel asleep 5 times between 10pm and 1:30 am. About every 20-30 min I would hear him all of a sudden make lots of noise and wake up. It sounds to me like he was gasping for air, recovering and then attempting to fall back asleep.
2) At about 1:30am, I sat beside him and recorded him for several minutes. The following links will take you to the video I took.
It sounds to me like he is taking shallow breaths and breathing through a straw for a while, then something clears, he is able to take a deep breath, then breath ok for a few seconds and repeat the cycle of breathing through a straw.
3) He was on the pulse-oximeter the entire time. He was on .2 liters of Oxygen. His heart rate was at 130 (+/-10). On the oxygen he typically didn't drop below 98%. Off oxygen we see it drop to 94% at times.
4) When he cries now, his oxygen will drop into the 80's until we comfort him and he recovers. However this wasn't the case 6 weeks ago.
5) When he is awake we don't observe the same behavior. But we are moving to leaving the pulse-oximeter connected at all times.
We are concerned that the cyst area continues to grow and while it isn't so much that it prevents him from getting his 02 - it makes us very worried that he will turn blue again - at some point. Honestly, I was close to taking him to the ER last night.
Do you see the same thing I see in the videos? What other videos would be helpful to see?
Thanks
Jason and Kristine
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