Tuesday, January 31, 2017

Family Fun January 2017

January was a month full of unexpected events. Kristine's pregnancy was going as good as could be expected. She didn't get out much or do much. She was carrying around an extra 50 lbs of baby. The last ultrasound we had estimated baby A to weigh 8lbs 1oz and baby B to weigh 7 lbs 6 oz. WOW. Once a week we had an ob-gyn appointment and a non-stress test. Everything was normal.  
Kaitlyn turned 4 years old this month. On the day of Kaitlyn's birthday Kristine was having contractions all day, but before the birthday party she started shaking. After the party we took her to the hospital. After an epidural and a "good nights" sleep the twins were born the next morning.
Joseph was the first twin born (only one push) and James was the second baby born. Joseph was a vaginal birth and James was an emergency c-section. Joseph couldn't breath and was in-tubated and life-flighted to IMC. After 13 days in the NICU with breathing problems a cyst was found in his airway and removed. James was in the hospital a few days for high bilirubin numbers.
Life still goes on in the midst of health problems. We had a lot of snow in January. The kids had fun playing in the snow. Jonathan did his science project on the ph of different liquids and had a snow campout with the scouts. We were blessed to have lots of help: meals, babysitting and carpools. We are especially greatful for the miracle of modern medicine that made it possible for Joseph to be on his way to being healed.
Week 34

Week 34
Week 34 Non Stress Test
Week 35
Rebekah, Justin and Kaitlyn making a snowman
Kristine and Jacob going on a ice cream run.

Kaitlyn's Birthday Party - 4 years old
Kaitlyn's Birthday Party - 4 years old
James Newborn
Joseph Newborn
Jonathan Snow Cave Campout
Lots of fun snow to play in

Jonathan's 6th Grade Science Project

James 2 weeks old

Joseph 2 weeks old

Kayla and Aidan watching James
Scripture Study Fun

Monday, January 30, 2017

Joseph - Day 15 PICU PCH January 30, 2017

Daniels Twins - Mon, Jan 30, 2017 at 11:55 PM
Today has been a really good day. Joseph is finally off the ventilator and is doing well.  The docs did a flexible laryngoscopy (camera down the throat through the nose) and confirmed that he is still red and sore from the surgery, but the swelling was down enough.  So they took out the tube!  For the first time since he was 10 minutes old he doesn't have a tube down his throat.  :)

He is now breathing well, on Oxygen (2 Liters of 100%) via cannulas in his nose. The nurse says he is a bit cranky, but that is understandable given his ordeal.  

The coolest part is that we got to listen to him cry - soft, and raspy...but it was still a cry :)

Prayers are being answered!

Jason and Kristine


Joseph before the extibation: 
Inline image 3


If you like MRI pictures, you can see the cyst in the following couple pics

Inline image 2
Profile of Joseph and his cyst. The bright white spot is the cyst.

Inline image 1
View of the cyst in cross section of his neck

The "Getting Joseph Home List"
  1. Get off the ventilator - Done 1/30
  2. Turn off the heater
  3. Heal from surgery
  4. Get all nutrition from milk
  5. Start feeding orally
  6. Get all food orally
  7. Gain weight for several days 
  8. Pass the carseat test - (maintain oxygen levels while in the car seat)
  9. Doctor give the thumbs up.

Sunday, January 29, 2017

Joseph - Day 14 NICU - PCH - January 29, 2017

Joseph Update Sunday 1/29 - Sun, Jan 29, 2017 at 10:59 PM
Saturday and Sunday have been a very quiet couple of days.  The Ear Nose and Throat (ENT) wants to be especially sure that Joseph doesn’t yank out his ventilation tube while his throat is recovering from the surgery.  To this end he has been sedated and under general anesthetic since Friday night (SAD).  He is getting two does of steroids to reduce the swelling and are planning on taking him off the ventilator Monday morning (GOOD).  They will look down his throat with a camera (flexible bronchoscopy) before extubating to confirm that the swelling isn’t too bad.  

Of interesting note, one doctor said this type of issue is rare and another said something about only one in 30 years.  Rare or not, I am just glad for some highly skilled doctors that know how to fix it ðŸ˜ƒ

I have asked the docs and nurses several time when he will be able to come home.  They won’t give a date ðŸ˜” the truth is it is really up to Joseph himself.  But there is a list that we can track.  My guess is we may get stuck on one item for a week and fly through others very quickly.  

The "Getting Joseph Home List"
  1. Get off the ventilator
  2. Heal from surgery
  3. Get all nutrition from milk
  4. Start feeding orally
  5. Get all food orally
  6. Gain weight for several days 
  7. Pass the carseat test - (maintain oxygen levels while in the car seat)
  8. Doctor give the thumbs up.
I know we have said it before, but thanks to you and other for the support we have gotten.  The meals, babysitting, phone calls, prayers and thoughts have been amazing - Thank you so much. 

Jason and Kristine

Saturday, January 28, 2017

Joseph - Day 12 - PCH - First Surgery - Friday 1/27 - Sat, Jan 28, 2017 at 12:38 AM



Summary 

What A Crazy day! I expected a chill day with the bronchoscopy in the afternoon and all would be well.  However, the doctor called at 7am and said they were doing at 7:30am (GOOD).  He found a large cyst in his air way, but needed to confirm that it was safe to simply remove before he attempted to removed it.  The MRI was done at 11am  and confirmed the cyst was 99% in the airway and could be removed (GOOD).  They actually had a hard time re-intibating him and were very nervous about him pulling the tube out (NOT GOOD). To ensure his safety they gave him a paralytic and let the ventilator breath for him.   To the nurses surprise, the doctor got him scheduled for surgery this afternoon and they got started around 4pm (EXCELLENT).  It was originally expected to take 2 hours, but the doctor took his time (5.5 hours) to extract it and took great care in separating it from the vocal cords. In the end we are very relieved and glad to know what has been causing the problem and being to move to the next steps.   He will be heavily sedated for a few days until he heals and the swelling has gone down and they will try and extibate him yet again.  (for the 5th and hopefully final time)   


I got the nurse to highlight what needs to be done before our kiddo comes home.  I will try and walk through that tomorrow.  

Timeline: 
7:30 am  - Rigid Bronchoscopy Micro-laryngoscopy   performed, a mass was found above the vocal cords 
    • Found a “Huge Tumor or Cyst"
    • Lower right side (above vocal cords)
    • Re-intibated and had a hard time doing it
    • Need an MRI to see all of what needed to be removed
    • Attempting to get MRI today and surgery tomorrow (Saturday)
10:00 am - Update from Rianna RN -  
    • Completely paralyzed to prevent tube from coming out.
      • Vecunium (aka “Vec”)
    • Very very concerned about tube coming out and don’t believe it can be put back in if it comes out
    • Found a Large Round Mass
    • On the ventilator 100% for breathing. 
      • RR 30
      • O2 Sats: 92%
    • Waiting on x-ray to confirm location of tube and blood gas
    • E.N.T.s want to make sure he stays intubated
    • NOTE: had to run over and make sure the Respiratory Therapist didn’t pull out the tube
10:30 am - Update from Cortney the NP 
    • Q: Is it OK for him to be on the paralytic a long time? 
      • A: Yes - They have had babies on it for several weeks and months. 
    • Q: Is Skin to Skin liked at PHC? When can it be done? 
      •  As long as this critical, no. A couple / few days after surgery . They LOVE LOVE LOVE skin to skin
    • They removed the NG tube (Feeding Tube) - will remain on IV’s for nutrition
    • She thought it would be a week before surgery … This turned out wrong… but was good for context
    • The location is near the "epiglottis"
11:00 am - MRI was done. the mass is confirmed to be cyst, 99% is in the airway. a Strand does go down behind the side.  
    • Dr. Park - Showed a “Huge Cystic Mass"
    • Hoping there is a liquid inside
    • The term “Benign Lesion” was said
1:30 pm - Got the call that he was going to have surgery at 2:30 
2:20 pm Consent given to Dr. Orb 
    • micro-laryngoscopy
    • Is a tracheotomy an option? Yes, but not preferred and is a last resort.  Would re-intubate and have several discussions before that was needed.
2:30 pm Arrived and found out that surgery was delayed because wanted to have some blood on hand for transfusion if needed.  
3:00 pm Walked down to surgical unit and ended up in waiting room 
5:20 pm - Call indicating still in progress and needed an other hour 
6:30 pm - Update - another hour . . still waiting 



Thanks for the continued thoughts and prayers.  I know they are being answered! 

Jason and Kristine 






Thursday, January 26, 2017

Joseph - Day 11 - NICU Transfer - January 26, 2017

Daniels Twins Update - Thursday 1/26 - Thu, Jan 26, 2017 at 11:58 PM

Joseph had a successful transport to Primary Children's Hospital this afternoon. I was impressed with everyone involved and we will miss the great staff at IMC.  The cool part is they are just as good at PCH.  He is schedule for his bronchoscopy sometime tomorrow afternoon.  I met the Ear Nose and Throat Specialist Dr. Park, he says they do lots and lots of these so I am hoping for a positive outcome. 

Joseph dropped nearly a pound in water weight the last few days and you can actually recognize him. 
Inline image 1






Pics of James to come later :)

Wednesday, January 25, 2017

Joseph - Day 10 NICU IMC - January 25

Everyone, 

Today has been a general relax and recover day.  Joseph is still waiting for a bed at Primary Children's but I am told he should transfer tomorrow (GOOD).  It probably means I get to ride in a ambulance as well (I am getting to do a lot of things for the first time the last couple weeks).  Tonight, after several attempts Kristine was able to hold him for about an hour - even with him on the ventilator (EXCELLENT).  I have been a bit surprised at how much they encourage this and go out of their way to make it happen. I have to admit a bit of jealousy that she gets to hold him, but then, she was pregnant for 9 months so she gets first dibs. :)

The nurses tonight explained that when he is off the ventilator he has what is called a "strider" basically something in his throat/airway is constricted enough that he  makes a wheezing noise as he tries to breath.  Think about a kid with bad croup attempting to breath (NOT GOOD).  On good note, he is progressing well with his nutrition and is processing Mom's milk quite well.   They say he is pretty annoyed at the tube and tries to pull it out...so they keep him swaddled up pretty good. 

With Love and Appreciation, 

Jason and Kristine



DETAILS
Joseph update 1/25 - Wed, Jan 25, 2017 at 9:44 PM
increase up feedings: 42ml
down his fluids
Dr. Zinckin
  • Does need to go to primary children's hospital
  • “Developed severe High striders - high pitched whistling
    • Indicates some sort of blockage
  • His Vocal Cords pretty swollen - unlikely that it is the only blockage
  • Not a good reason to have such inflamed vocal cords
    • Saw the original intubation there was no issues
  • Could be Sloppiness to the trachea
  • Addressing the inflammation - steroid
  • zantac - to 
  • change the feeding tube to feed directly into the large intestines
  • X-rays don’t show the issue
  • Done in the OR Room
    • Why not the flexible bronchoscopy will show to the vocal cords
    • not under general 
    • need him to breath on his own
    • do it in the OR if there is the problem

Jenny
wean on vent
Feedings up
  lower tpn
nutrition is next 
9:30 meet will know after that
Ambulance maybe 

Tuesday, January 24, 2017

Daniels Twin Update - Tue, Jan 24, 2017 at 10:50 PM

Hey Everyone,

1 - Kristine is getting better, even if it taking longer than what we are used to. 

2 - James is eating well and consistently, (EXCELLENT).  A followup with the pediatrician shows his bilirubin count is at 12 (GOOD) only up a 2 points since we left the hospital on Sunday morning. Now I just have to adjust to getting up at 4:30 in the morning for feedings ;) ...argh! I must be getting old, I don't remember it being this hard. 

3 - Joseph - 
    In short, they attempted to remove the ventilator but something was blocking his breathing (NOT GOOD) and after 2 hours of hard breathing they intubated him again (3 time).   Putting him back on the ventilator  resolved the problems, he is resting quietly, he is breathing 50-70 times a minute - mostly on his own (GOOD), Oxygen levels are good.   
    The big question is what is blocking his breathing?  Doing an endoscope the Doctor saw inflamed vocal cords. The throat could simply be swollen from the tube being there or there could be some other blockage that prevent the breathing..maybe the root cause of all the problems.  With this being the second time the extibation has failed and a specialized Ear Nose and Throat doctor needs to consulted and probably  do a “rigid bronchoscopy” (see: http://www.hopkinsmedicine.org/healthlibrary/test_procedures/pulmonary/bronchoscopy_92,p07743/).   In order to do this would he need to be transported to primary children’s (GOOD/ NOT GOOD).  The sad part is that he would have to endure a transport (Ambulance or Helicopter).  However, a good, thing because he would have access to the most advanced medical/specialist in the state.  
    Overall, Joseph is now up to ~8 lbs and is a fighter and one strong little dude.  Having spoken to several people that have had kids in the NICU say there are good and bad days.  So far we have had more good days than bad days so we will take that as a win.  We have faith and hope that he will come home soon.  
Thanks to each of you for your love, support, and thoughts.
Jason and Kristine

NOTE: Feel free to forward to anyone that would like to know what is going on. I have attempted to include everyone that might be interested, but I am sure I have missed someone, please let me know if you or someone else should be added to the list.  Or if I am bugging you too much let me know and I can take you off the list. 

Joseph is off the ventilator ... barely - Tue, Jan 24, 2017 at 10:58 AM

Good luck reading my notes..this is hot off the press

11am - Allyson
Extibation was done at 10am
Still swollen
on Nasal IMV - Intermittent mechanical Ventilation
Step above the CPAP
He wasn’t keeping up his own 
1 Dose of RecimickEpui - A type of epinephrin
1 Dose of Ativan is in progress
   * Need to calm him down

Was very irritable…he wanted it out
His vent settings was on very low support over night
Gave him a partial feeding before 
May be a little hungry
Breathing is via Nose - which will agitate the back of his throat
Give him a break through dose of the Ativan
      * hoping that this will calm him down

O2 42%
TCM - Needs to be recalibrated
Blood Gas? Not during the night
   Not highly concerned - just treating him
Just need him to calm down 
Heart Beats are good
RR - set to 40 breaths to minute 

Twin Details Jan 22nd and 23 - Tue, Jan 24, 2017 at 10:20 AM

Sunday Jan 22
Afternoon
  • Exhibition Failed:  He was breathing well on his own via the ventilator, however after the tube came out his through swelled (closed??? - don’t know) but he had a hard time breathing.   The re-intibated him and is doing OK now. 
    • CO2 76% (HIGH)
    • RR - 60/min
    • O2 30%
    • They had to suction out a little blood
    • He is on 3 doses of Desemethazon (aka - dekadrone) every 12 hours (Q12) to reduce the swelling
    • @ 8pm blood gas is normal

  • Feeding: 
    • he is getting 70 ml / kilo which meets 1/2 his nutrition needs
    • upped his breast milk feeding to 32 ml / 3 hours … ~8 ounces/day
Plans for Tomorrow
  • MRI is scheduled for tomorrow afternoon
  • Attempt to re-extibate after the MRI

Monday Jan 23
9:30 am : Tyler
  • He is doing fine
  • Status 
    • O2 - 24%
    • CO - 41%
    • Blood Gas results good
    • RR - 60 / min - machine is doing 40 
      • He is on PSV Mode  - which supports him with each breath by providing press when he breaths
      • ISMV Mode - this will be switch too before re-extibation, this make him do the work of breathing all in and all out. It also make sure that he get a certain # of breaths a minute
  • MRI - Will happen today, but not yet scheduled
  • Out of Milk, needs more by 11:30am 
    • They can do Pasteurized Human Breast Milk, but it is expensive

  • Exhibition is planned for 4pm 
  • What to Visit? 
    • Cares are done Q3 - 8:30, 11:30, 2:30 etc. These are good times to come and interact with him. 
11:00 am - Visit and milk run
  • Changed a diaper
  • He was crying and visibly upset, but no sound due to the tubes
  • He was calmed as we placed hands on his little body
  • Finally calmed after Tyler put a warm blanket on top of him

6pm - Call from Jen - NP
  • Did NOT do the extibation
    • Decided to give 3 more doses (1/2 amount) of desemethazone 
    • Give more time for the swelling in his throat to go down
      • (What are the additional side affects of dsemethezone???)
    • Still on Supported Mode on ventilator
    • doing 33 RR on his own
    • 02 - 21% to 28% (GOOD)
  • Off of Bilirubin Lights 
  • doing X-Rays Weekly to ensure the PICC line is still in the correct place
    • As he grows it can move out of the optimal spot
  • MRI Results - ALL is NORMAL!!!
    • The ischemia found in the head ultrasound could have simply been a shadow
    • Again - All things are normal with the MRI
    • Interesting note: They did a test of the gas (aka - blood gas) in the cord blood immediately after birth. the results showed normal levels which meant that his brain was not starved of oxygen at birth

Monday, January 23, 2017

Daniels Twins 1/22 - Mon, Jan 23, 2017 at 12:02 AM

Quick note today: 

1. I brought James home today, he is eating and pooping well.  Never been excited when a kid pooped before.   Not sure why the Oxygen levels were low, but they disappeared and his bilirubin count is remaining low. 

2 Joseph.  They tried to remove the ventilator today, but despite him breathing well, his throat was swollen from the tube being down his throat which prevented him from breathing.  They re-intubated him and he is stable again.   He is on steroids to decrease the swelling and they are likely to try again tomorrow.  Everyone I have talked to with a child in the NICU indicated there will be good and bad days, looks like we didn't have a good day today.  I am hopeful for a good day tomorrow. 


Thanks for your continued support, thoughts and prayers, we definitely need them. 

Jason and Kristine

Saturday, January 21, 2017

Joseph Day 5 - NICU - Friday January 20


Joseph - He is still critical and on the ventilator, but continues to improve.  He is now off the morphine drip (although he still gets some every 4 hours) and is breathing more and more on  his own.   Mom as able to hold him tonight for about an hour (GOOD).  The docs are hoping to take him off the ventilator tomorrow and move him to to a  CPAP machine.  They still won't guess when he gets go home, but we are hopeful for a week or so. 

Thanks to all of you for the love and support (spoken and unspoken).  Please know it has an affect and we feel the support and are very grateful for all of it. 

Jason and Kristine

Joseph....

6:45 am - Emma
    • NOTE: the N0 was supposed to be dropped down to 4 at 6am
    • Pretty Sleepy
    • O2 - 9797
    • O2 been at 28%
    • NO at 4 ppm as of 6am
      • Tolerating the 4ppm well
  • TCM 50

Day Nurse : Tyler
1pm
    • NO2 down to 4 and will be at 0 by 6am 1/21
    • Started feeding 8 ml every 3 hours
    • O2 - 24 ->30%
    • Morphine down 1/3 @ 11 am and still very few breaths at 1pm
    • Ativan scheduled Q6 - every four hours
    • X-Ray shows no trace of either pnuemo thorax nor pnuemomediastinum
    • On arrival @ 1pm self breaths increase to 10-15, dropped back to a few per minute @ 3pm
    • Would like skin to skin tomorrow afternoon
    • Continues to improve on tone and response
    • Still a bit of swelling
      • However is peeing lots …about the same amount as is given 
  • Left 40 ml of breast milk
    • WILL NEED: ~60 ml

11:15 pm - Nurse: Heidi
    • Sleepy - 
    • Morphine - .3 
    • Breaths- 3-7 on his own
    • NO2 - @ 2 
    • O2 - 28% up just a touch
    • Tolerating the feeding? Well - 
      • 8 mls / hours
      • Stomach still soft
        • 33 cm 


Joseph - Day 6 NICU - Saturday, January 21, 2017

First time holding Joseph


Joseph

8am - Nurse: Tyler

  • Off NO doing good
  • O2 - 22 -30%
  • Morphine - .05 as of 1am
  • Breathing more on his own +15-20
  • Echocordo some time today
  • Skin to Skin? 
1:00 pm 
  • Off NO
  • Off Morphine Drop
  • Need 16 ml Q3 = 16 * 8 = ~4 ounces / day
4:12 pm - NP Jeremiah 
  • Echo Cardio Gram Shunt closed, Function is good
  • Ventilator: Rate: Down  to  15, Own
    • His range..30-50
    • Sensor will help him finish up to 15 of his own
    • Breath every 1.3 seconds
    • If go well. . . next decrease pressure and then lower rate
  • Feeding: 16ml/3 hours
  • Morphine drip is down to 0, q4 scheduled and look to drop to Q6
7pm
  • Mom held him for about 50 min
  • Dropped off about 240 ml of milk

Friday, January 20, 2017

James Hospital - Friday and Saturday Jan 20-21





Hey Everyone

We had a nice surprise on Friday afternoon when James had a high bilirubin count 20 (NOT GOOD)(critical limit is 21) and he was having a hard time eating and rather lethargic.  We was direct admitted to IHC in Riverton.  His Oxygen Saturation Levels were in the 80's and dipped into the 70's, leading the doctor to think of infection.  After being under the lights for 18 and nearly every test and culture being run he is doing quite well.  They never found any infection (GOOD).  The bilirubin count has dropped to 9 (GOOD) and he has oxygen levels 90's without any oxygen (GOOD).  He is now eating well every 3 hours and being watched here in the hospital.  Because he is on antibiotics he needs to stay here until the cultures are completed.  We are hoping he will be able to go home late tomorrow night. 


Thanks to all of you for the love and support (spoken and unspoken).  Please know it has an affect and we feel the support and are very grateful for all of it. 


Jason and Kristine
-----------------------------------------
Not wanting to be outdone by his twin brother, now James is back in the hospital too :-(. He's up at Riverton as of last night. There was a concern with his O2 levels, and they are doing some tests.  Jason says he seems to be doing better,  and hopefully he will be able to come home again tomorrow. We feel for you, Daniels. And we are here for you!

-Bishopric

I'm so sorry to hear that!!  You will all continue to be in our prayers.  Is there anything we can do more of to help?


-Trish Coburn
----------------------------------------------------------------------------------------------------------------------------------------
James: 

9am - Belirubon count 20.8, critical level is 21
12pm: at 25 ml
3:30-5pm: 50 ml
4:10 - Contacted Dr. Edmunds
5:10 got a hold of Kathy @ South Summit Ped
5:40 agreed with kathy to take to Riverton 
6pm: drank 10ml
6:40 got call to come in 
7:15 left for riverton
7:45 got in and was u
8:00 pm got hooked up to lights and O2 sensors
  • 02 sitting between 89 down to 77 (Got doctor concerned)
  • Very lethargic
9pm Feed 10 ml of soy - wouldn’t drink more
9:15 pm  - Results: 
  • CBC All normal 
  • Bili count 19.3 down from 20.9
  • CRP - 0.1 ?? but doc says normal 
  • All things look like they are supposed to 
  • Because Bili is below 20 - doesn’t explain lethargy NOR 02 Saturation
    • Worried about infection
    • Blood cultures already being processed
    • Worried about Meningitis - Lumbar Puncture needed
10:30 pm - Performed Lumbar Puncture - No Obvious issues  - liquid has yellow tinge
10:45 pm - catheter to check form UTI - comes out yellow with a touch of red (orange)
10:50 pm - while getting catheter needed him to pee and he ate rest of the 2ounce bottle - ~45 ml
11:00 pm - calm now and under the lights
11:08 pm - NOTES
  • Waiting for 1 hr for Lumbar results
  • Culture several hours and the days 
  • RSV test will take 6-8 hours
  • Will start antibiotics asap - as not sure what else 
  • There is nothing more we could really have done - Kristine and I did everything we knew to do.

FRIDAY
James: 

9am - Belirubon count 20.8, critical level is 21
12pm: at 25 ml
3:30-5pm: 50 ml
4:10 - Contacted Dr. Edmunds
5:10 got a hold of Kathy @ South Summit Ped
5:40 agreed with kathy to take to Riverton 
6pm: drank 10ml
6:40 got call to come in 
7:15 left for riverton
7:45 got in and was u
8:00 pm got hooked up to lights and O2 sensors
  • 02 sitting between 89 down to 77 (Got doctor concerned)
  • Very lethargic
9pm Feed 10 ml of soy - wouldn’t drink more
9:15 pm  - Results: 
  • CBC All normal 
  • Bili count 19.3 down from 20.9
  • CRP - 0.1 ?? but doc says normal 
  • All things look like they are supposed to 
  • Because Bili is below 20 - doesn’t explain lethargy NOR 02 Saturation
    • Worried about infection
    • Blood cultures already being processed
    • Worried about Meningitis - Lumbar Puncture needed
10:30 pm - Performed Lumbar Puncture - No Obvious issues  - liquid has yellow tinge
10:45 pm - catheter to check form UTI - comes out yellow with a touch of red (orange)
10:50 pm - while getting catheter needed him to pee and he ate rest of the 2ounce bottle - ~45 ml
11:00 pm - calm now and under the lights
11:08 pm - NOTES
  • Waiting for 1 hr for Lumbar results
  • Culture several hours and the days 
  • RSV test will take 6-8 hours
  • Will start antibiotics asap - as not sure what else 
  • There is nothing more we could really have done - Kristine and I did everything we knew to do.
----------------------------------------------------------

SATURDAY
James: 
1am : Billi Count 17…Next test at Noon

3am : Told them you were on Narco
9am : 37 ml Formula
10am: Dr. Nordo and Nurse Sheena
  • Lumbar Puncture Results: Negative
    • Culture is being done will take 48 hours
  • RSV Test Negative
  • Urinalysis initially negative…waiting on culture
  • Blood Culture..2 hr neg.  waiting for 48 hours
  • Moved to Low flow oxygen ….0.03….1/10th of what he was getting last night

  • Notes:
10:20 Am
  • Stopped Oxygen altogether, tracking O2 started 99%

11 pm Notes
  • Off all Oxygen
  • O2 Stats 90+
  • Off lights 
  • bili count at 9 as of noon
  • Eating ~42 mils every 3 hours
  • Wait for cultures to complete before we can go home
SUNDAY