Hey Everyone
We had a nice surprise on Friday afternoon when James had a high bilirubin count 20 (NOT GOOD)(critical limit is 21) and he was having a hard time eating and rather lethargic. We was direct admitted to IHC in Riverton. His Oxygen Saturation Levels were in the 80's and dipped into the 70's, leading the doctor to think of infection. After being under the lights for 18 and nearly every test and culture being run he is doing quite well. They never found any infection (GOOD). The bilirubin count has dropped to 9 (GOOD) and he has oxygen levels 90's without any oxygen (GOOD). He is now eating well every 3 hours and being watched here in the hospital. Because he is on antibiotics he needs to stay here until the cultures are completed. We are hoping he will be able to go home late tomorrow night.
Thanks to all of you for the love and support (spoken and unspoken). Please know it has an affect and we feel the support and are very grateful for all of it.
Jason and Kristine
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Not wanting to be outdone by his twin brother, now James is back in the hospital too :-(. He's up at Riverton as of last night. There was a concern with his O2 levels, and they are doing some tests. Jason says he seems to be doing better, and hopefully he will be able to come home again tomorrow. We feel for you, Daniels. And we are here for you!
-Bishopric
I'm so sorry to hear that!! You will all continue to be in our prayers. Is there anything we can do more of to help?
-Trish Coburn
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James:
9am - Belirubon count 20.8, critical level is 21
12pm: at 25 ml
3:30-5pm: 50 ml
4:10 - Contacted Dr. Edmunds
5:10 got a hold of Kathy @ South Summit Ped
5:40 agreed with kathy to take to Riverton
6pm: drank 10ml
6:40 got call to come in
7:15 left for riverton
7:45 got in and was u
8:00 pm got hooked up to lights and O2 sensors
- 02 sitting between 89 down to 77 (Got doctor concerned)
- Very lethargic
9pm Feed 10 ml of soy - wouldn’t drink more
9:15 pm - Results:
- CBC All normal
- Bili count 19.3 down from 20.9
- CRP - 0.1 ?? but doc says normal
- All things look like they are supposed to
- Because Bili is below 20 - doesn’t explain lethargy NOR 02 Saturation
- Worried about infection
- Blood cultures already being processed
- Worried about Meningitis - Lumbar Puncture needed
10:30 pm - Performed Lumbar Puncture - No Obvious issues - liquid has yellow tinge
10:45 pm - catheter to check form UTI - comes out yellow with a touch of red (orange)
10:50 pm - while getting catheter needed him to pee and he ate rest of the 2ounce bottle - ~45 ml
11:00 pm - calm now and under the lights
11:08 pm - NOTES
- Waiting for 1 hr for Lumbar results
- Culture several hours and the days
- RSV test will take 6-8 hours
- Will start antibiotics asap - as not sure what else
- There is nothing more we could really have done - Kristine and I did everything we knew to do.
FRIDAY
James:
9am - Belirubon count 20.8, critical level is 21
12pm: at 25 ml
3:30-5pm: 50 ml
4:10 - Contacted Dr. Edmunds
5:10 got a hold of Kathy @ South Summit Ped
5:40 agreed with kathy to take to Riverton
6pm: drank 10ml
6:40 got call to come in
7:15 left for riverton
7:45 got in and was u
8:00 pm got hooked up to lights and O2 sensors
- 02 sitting between 89 down to 77 (Got doctor concerned)
- Very lethargic
9pm Feed 10 ml of soy - wouldn’t drink more
9:15 pm - Results:
- CBC All normal
- Bili count 19.3 down from 20.9
- CRP - 0.1 ?? but doc says normal
- All things look like they are supposed to
- Because Bili is below 20 - doesn’t explain lethargy NOR 02 Saturation
- Worried about infection
- Blood cultures already being processed
- Worried about Meningitis - Lumbar Puncture needed
10:30 pm - Performed Lumbar Puncture - No Obvious issues - liquid has yellow tinge
10:45 pm - catheter to check form UTI - comes out yellow with a touch of red (orange)
10:50 pm - while getting catheter needed him to pee and he ate rest of the 2ounce bottle - ~45 ml
11:00 pm - calm now and under the lights
11:08 pm - NOTES
- Waiting for 1 hr for Lumbar results
- Culture several hours and the days
- RSV test will take 6-8 hours
- Will start antibiotics asap - as not sure what else
- There is nothing more we could really have done - Kristine and I did everything we knew to do.
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SATURDAY
James:
1am : Billi Count 17…Next test at Noon
3am : Told them you were on Narco
9am : 37 ml Formula
10am: Dr. Nordo and Nurse Sheena
- Lumbar Puncture Results: Negative
- Culture is being done will take 48 hours
- RSV Test Negative
- Urinalysis initially negative…waiting on culture
- Blood Culture..2 hr neg. waiting for 48 hours
- Moved to Low flow oxygen ….0.03….1/10th of what he was getting last night
- Notes:
10:20 Am
- Stopped Oxygen altogether, tracking O2 started 99%
11 pm Notes
- Off all Oxygen
- O2 Stats 90+
- Off lights
- bili count at 9 as of noon
- Eating ~42 mils every 3 hours
- Wait for cultures to complete before we can go home
SUNDAY