Joseph Update Sunday 1/29 - Sun, Jan 29, 2017 at 10:59 PM
Saturday and Sunday have been a very quiet couple of days. The Ear Nose and Throat (ENT) wants to be especially sure that Joseph doesn’t yank out his ventilation tube while his throat is recovering from the surgery. To this end he has been sedated and under general anesthetic since Friday night (SAD). He is getting two does of steroids to reduce the swelling and are planning on taking him off the ventilator Monday morning (GOOD). They will look down his throat with a camera (flexible bronchoscopy) before extubating to confirm that the swelling isn’t too bad.
Of interesting note, one doctor said this type of issue is rare and another said something about only one in 30 years. Rare or not, I am just glad for some highly skilled doctors that know how to fix it 
I have asked the docs and nurses several time when he will be able to come home. They won’t give a date 
the truth is it is really up to Joseph himself. But there is a list that we can track. My guess is we may get stuck on one item for a week and fly through others very quickly.
The "Getting Joseph Home List"
- Get off the ventilator
- Heal from surgery
- Get all nutrition from milk
- Start feeding orally
- Get all food orally
- Gain weight for several days
- Pass the carseat test - (maintain oxygen levels while in the car seat)
- Doctor give the thumbs up.
I know we have said it before, but thanks to you and other for the support we have gotten. The meals, babysitting, phone calls, prayers and thoughts have been amazing - Thank you so much.
Jason and Kristine
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