Everyone,
Today has been a general relax and recover day. Joseph is still waiting for a bed at Primary Children's but I am told he should transfer tomorrow (GOOD). It probably means I get to ride in a ambulance as well (I am getting to do a lot of things for the first time the last couple weeks). Tonight, after several attempts Kristine was able to hold him for about an hour - even with him on the ventilator (EXCELLENT). I have been a bit surprised at how much they encourage this and go out of their way to make it happen. I have to admit a bit of jealousy that she gets to hold him, but then, she was pregnant for 9 months so she gets first dibs. :)
The nurses tonight explained that when he is off the ventilator he has what is called a "strider" basically something in his throat/airway is constricted enough that he makes a wheezing noise as he tries to breath. Think about a kid with bad croup attempting to breath (NOT GOOD). On good note, he is progressing well with his nutrition and is processing Mom's milk quite well. They say he is pretty annoyed at the tube and tries to pull it out...so they keep him swaddled up pretty good.
With Love and Appreciation,
Jason and Kristine
DETAILS
Joseph update 1/25 - Wed, Jan 25, 2017 at 9:44 PM
increase up feedings: 42ml
down his fluids
Dr. Zinckin
- Does need to go to primary children's hospital
- “Developed severe High striders - high pitched whistling
- Indicates some sort of blockage
- His Vocal Cords pretty swollen - unlikely that it is the only blockage
- Not a good reason to have such inflamed vocal cords
- Saw the original intubation there was no issues
- Could be Sloppiness to the trachea
- Addressing the inflammation - steroid
- zantac - to
- change the feeding tube to feed directly into the large intestines
- X-rays don’t show the issue
- Done in the OR Room
- Why not the flexible bronchoscopy will show to the vocal cords
- not under general
- need him to breath on his own
- do it in the OR if there is the problem
Jenny
wean on vent
Feedings up
lower tpn
nutrition is next
9:30 meet will know after that
Ambulance maybe
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